Increasing Trust and Acceptance: Tips for Caregiver Support Groups
Those who care for patients living with memory disorders often experience" caregiver burden" and stress. These emotional challenges can negatively effect their health, employment, and finances. The Banner Health's Alzheimer's Institute (BAI) is providing support to Native caregivers and others through a variety of services, including group meetings and conversations. Their approach could be a helpful model for IHS Alzheimer's Program grantees and other tribal and urban Indian communities looking to expand their caregiver services and supports.
More than a dozen support groups are offered by BAI, covering a range of personal and caregiver support topics. Groups are open and available to anyone, many by phone, virtually, or in person, including the Native American Caregiver Circle group.
"Sometimes, feedback can be difficult to hear, but receiving it from a peer may have a deeper impact since they are experiencing a similar situation. When members come to trust and accept one another, they generally receive feedback and gentle confrontation as a movement toward accountability and positive change," according to Lori Nisson, BAI Family & Community Services Director.
For organizations interested in starting a support group, the BAI provided helpful tips and truths:
- Facilitators should help set group guidelines and steer away from conversations dominated by griping, conflict between members, or one person controlling the session.
- Many people are initially nervous about sharing. Support participants might spend the first session simply introducing themselves and listening to others as they ease into participation.
- When participants begin sharing with the group, it can be liberating, and most often, they find an outpouring of support from facilitators and peers.
- Participants are in control of what, when, and how much is shared with the group. Participants should not feel obligated to share what they are not ready to disclose.
Above all, BAI states it's very important that group members feel safe and that those sharing are allowed to speak without judgment.
Click here for more information on BAI.