Indian Health Service - Alzheimer's Disease and Dementia Program

IHS Awards Nearly $1.2 Million Addressing Alzheimer’s

During World Alzheimer’s Month, the Indian Health Service (IHS) is announcing the award of an additional $1.19 million through six cooperative agreements to enhance tribal and urban Indian health system local capacity to provide dementia care and services. The total commitment for the new three-year awards is nearly $3.6 million.

The 2024 awardees include:  

  • Santo Domingo Pueblo (New Mexico) – $199,716
  • Tuba City Regional Health Care Corporation (TCRHCC) (Arizona) – $200,000  
  • Indian Health Council Inc. (California) – $200,000
  • Indian Health Board (IHB) of Minneapolis Inc. (Minnesota) – $200,000  
  • Nez Perce Tribe (Idaho) – $199,383
  • Northern Valley Indian Health Inc. (California) – $200,000

This new round of funding builds on early work and lessons learned from awards offered in 2022 and 2023, with an eye for creating sustainable and replicable models of dementia care.  The 2024 awardees include two brand-new recipients and four awardees who received previous two-year funding.

We are excited to announce each of these newly-funded grant recipients!

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Empowering Progress in Dementia Care Through Evaluation

Valerie Jones has worked with the Indian Health Service (IHS) for two years. She is the Elder Health Care Data Coordinator in the IHS Division of Clinical & Community Services. In her role, she converts data into compelling narratives that resonate with various audiences, including policymakers, healthcare providers, and community members. Valerie’s work involves integrating the narratives of each grantee and presenting evaluation findings in a manner that informs, engages, and inspires action.

“Our evaluation efforts focus on revealing key insights important to our audiences,” Jones explained. “Whether we are reporting to federal councils such as the Recognize, Assist, Include, Support, Engage (RAISE) Family Caregiver’s Act or the National Alzheimer’s Project Act (NAPA), contributing to agency accomplishments, briefing Congress, or sharing findings through newsletters, we aim to ensure that the data we present drives meaningful improvements in programs and services.”

One notable aspect of this work involves data collected from grantees, GeriScholars, and Geriatric Nurse Fellows. Some grantees have organized elder listening sessions, actively involving elders in designing their programs to ensure services are tailored to their needs. This approach to gathering community feedback can serve as both a means of evaluation and contributes to creating culturally appropriate care models that resonate with the communities served.

In addition to her other responsibilities, Jones compiles a comprehensive report to Congress highlighting the significant achievements of the Alzheimer’s Program. This report showcases the work of grantees, partners, GeriScholars, Nurse Fellows, and pilots like the Community Health Representative screening initiative.  

The IHS Alzheimer’s Program team’s approach is deeply rooted in collaboration. They actively engage with communities, caregivers, and healthcare professionals to ensure that their strategies align with the needs of tribal communities. They strive to create practical, sustainable, and impactful interventions by continuously gathering feedback and refining their methods. Through these collaborative efforts, the program is achieving measurable outcomes that directly improve the lives of elders and their caregivers in tribal communities.

You can read more about Alzheimer’s Disease and Dementia: IHS 2023 Accomplishments in this blog post.

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Resources​​​​​​

The University of California San Francisco (UCSF) Memory and Aging Center offers open access to a free toolkit and suite of resources for the “Care Ecosystem” comprehensive dementia care model. The Care Ecosystem Toolkit includes:

The Free Care Ecosystem self-paced online training course is located on the Canvas Network. You join using code R9B67G. For more information or questions, email Sarah.Dulaney@ucsf.edu.

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Upcoming Events​​​​​​

Understanding Guardianship: Independence, Autonomy and Alternatives

September 18, 2024 
1–2 PM Eastern | 10–11 AM Pacific

This session will explain how guardianship works, potential pitfalls, and practical solutions to common problems. Visit the IHS Alzheimer’s Event Calendar for more information on this and other upcoming events. 
 

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