Dementia Documentary: A Road Trip Connecting the Disconnected
In many American Indian and Alaska Native communities, caregiving is rooted in deep cultural values, but it can still feel lonely. Fallon Tribal Health Center is using storytelling to bring caregivers together and spark conversation, starting with a film called Wine, Women, and Dementia.
This documentary shines a light on the isolation, financial stress, and physical and emotional challenges caregivers face while supporting loved ones experiencing dementia-related illnesses.
It estimates that approximately 16 million people in the U.S. are unpaid caregivers for someone with dementia. In a system with limited resources, caregivers featured in the film must lean on one another for strength and learn to celebrate life on the long road to death.
The film describes itself as “a road trip connecting the disconnected—because until there’s a cure, there’s community.”
“We thought that it would be great for caregivers and also for our medical staff, including providers, to get in touch with how the caregiver is feeling and what they are dealing with,” said Fallon Tribal Health Center Associate Director of Clinical Services Susan Bracamontes.
The screening, hosted by the Fallon Alzheimer’s grant program team, welcomed a diverse group of community members, including Fallon Paiute Shoshone elders, employees, and caregivers; Walker River tribal caregivers; and Pyramid Lake tribal caregivers. Representatives from Churchill County Social Services and Patient Advocate Audrea Mendiola also attended.
“We wanted everyone to be aware of the difficulty of caring for a patient with dementia and Alzheimer’s, but also bring hope to an often hopeless diagnosis,” she added.
To create a powerful viewing experience, the film was shown at Fox Peak Cinema. With caregiver support as a key focus of the Center’s work through its Indian Health Service Alzheimer’s Program dementia grant, organizers said this event helped validate the emotions many caregivers carry in silence. “Everyone loved the film, even the providers. The film had us crying and laughing.”
To view the film, visit the Wine, Women, and Dementia website or check your local PBS listings.
Pictured: Documentary “Wine, Women, & Dementia” was recently screened by the Fallon Tribal Health Center and its community. The film is about family caregivers experiences with dementia.